Connect with the community and mark your calendar for an upcoming event!
We've put together a range of programs to educate, empower and encourage patients and caregivers alike. Take a look through the programs below, and find what interests you the most! (Bilingual programs available.)
Living with Hemophilia
Personalizing Your Hemophilia A Treatment Plan
Introduces the importance of understanding patients’ unique pharmacokinetics (PK) profiles and gaining clarity on the role of treatment in their daily lives, according to activity level. (Available in Spanish)
Pain in Hemophilia
Helps people living with hemophilia A to manage pain by learning how to best describe it to their healthcare provider. (Only available in English)
Being Prepared for a Hemophilia A Emergency
Prepares patients and caregivers living with hemophilia A with the communication and advocacy skills needed in emergency care and travel situations. (Available in Spanish)
Women Who Bleed
Empowers women to know the meaning of their hemophilia A carrier status and understand bleeding and treatment options. (Only available in English)
Infusion Best Practices
This helpful program showcases the benefits and techniques for overcoming barriers to self-infusion. (Available in Spanish)
Building Healthy Joints
For people with hemophilia A, joint health is important. Understanding joint structure, adapting to joint damage, and evaluating and managing joint disease are all essential to staying strong and active. (Only available in English)
Hemophilia & Your Health Benefits
This important program explains health insurance benefits including the difference between fully insured and self-funded plans, the complexities of Medicare and Medicaid, and questions to ask a health plan rep to ensure uninterrupted treatment. (Available in Spanish)
What You Need to Know about Hemophilia
When a patient with hemophilia A needs to understand “the basics” such as what hemophilia is, the role genetics can play, and the treatment options available for bleeds—this informative session has got it covered. (Available in Spanish)
Pandemic Dialogues
The COVID-19 pandemic changed a lot about how we use technology, receive healthcare and engage with the world. Which of these changes are here to stay? We’ll discuss the strategies and skills that can help you stay healthy in our new normal. (Available in Spanish)
Empowering Caregivers
M-Powered
Brings moms of hemophilia A patients together to gain real-life, practical tools for success while building connections for a lifetime. (Available in Spanish)
Check it outTransitioning: Guiding a Young Person with Hemophilia Towards Independence
Managing care for a person with hemophilia is an act of love requiring a multifaceted skill set. This interactive, engaging and practical program will discuss helpful tips and resources for beginning or reinforcing a successful transition to self-management. This program is ideal for both parents and their sons with hemophilia. (Available in Spanish)
Check it outEncouraging Personal and Professional Growth
Game On
Encourages young adults with hemophilia A to be accountable for their treatment, stay healthy, maintain insurance coverage, and plan for college and a career afterward. (Available in Spanish)
And Now... Back to You
Designed to help adults with hemophilia A discover goals related to their career, education or passions, and to create a plan of action to help them succeed. (Available in Spanish)
Get connected
Interested in attending a live or virtual event? Want to get in touch with other members of the hemophilia community?
Meet Your Bayer Rep
